SU-WGBD-WKSP - WGBD Workshop: Heavy menstrual bleeding management

Sunday, April 21, 2024

08:30 – 14:45 CEST

Location: N105-N106

Chair(s)

Roshni Kulkarni, MD

Professor & Director Emerita
Michigan State University Centers for Bleeding and Clotting Disorders
East Lansing, United States
Robert Sidonio, MD, MSc. (he/him/his)

Pediatric Hematologist
Aflac Cancer and Blood Disorders
Atlanta, United States
Tahira Zafar, MBBS, DCP, FRCPath

Director HTC
Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN
Rawalpindi, Pakistan

Moderator(s)

Lauren Phillips (she/her/hers)

Board Member
Haemophilia New Zealand
Greymouth, New Zealand

Panelist(s)

Anne-Louise Cruickshank, Diploma (she/her/hers)

Haemophilia coordinator
Uct/sahf
Cape Town, South Africa
Nicola Curry, MD

Consultant Haematologist and Associate Professor
Oxford Haemophilia & Thrombosis Centre
Oxford, United Kingdom
Elizabete Pumpure, MD MBA

Gynecologist
Riga East Clinical University Hospital
Riga, Latvia

Speaker(s)

Apsara Boadas, Postgraduate Degree in Haematology (she/her/hers)

Head of Research and Teaching Department
Banco Municipal de Sangre DC/National Hemophilia Center of Venezuela
Caracas, Venezuela
Ampaiwan Chuansumrit, MD (she/her/hers)

Professor of Pediatrics
Department of Pediatrics, Ramathibodi Hospital
Bangkok, Thailand
Nicola Curry, MD

Consultant Haematologist and Associate Professor
Oxford Haemophilia & Thrombosis Centre
Oxford, United Kingdom
Peter Kouides, MD (he/him/his)

Medical Director
Mary M. Gooley Hemophilia Center
Rochester, United States
Roshni Kulkarni, MD

Professor & Director Emerita
Michigan State University Centers for Bleeding and Clotting Disorders
East Lansing, United States
Maria Elisa Mancuso, MD, PhD

Hematologist
IRCCS Humanitas Research Hospital
Milan, Italy
Elizabete Pumpure, MD MBA

Gynecologist
Riga East Clinical University Hospital
Riga, Latvia
Nita Radhakrishnan, MD Pediatrics, Fellowship In Pediatric Hematology Oncology (she/her/hers)

Additional Professor and Head of Department
Department of Pediatric Hematology Oncology
Post Graduate Institute of Child Health
Noida, India
Robert Sidonio, MD, MSc. (he/him/his)

Pediatric Hematologist
Aflac Cancer and Blood Disorders
Atlanta, United States
Pam Wilton, RN, CRE (she/her/hers)

Volunteer
Canadian Hemophilia Society
London, Canada
Tahira Zafar, MBBS, DCP, FRCPath

Director HTC
Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN
Rawalpindi, Pakistan

Presentations:

08:32 – 08:47 CEST

Definition and challenges of abnormal bleeding and Heavy Menstrual Bleeding (HMB)
Speaker: Nicola Curry, MD – Oxford Haemophilia & Thrombosis Centre
08:47 – 09:02 CEST

Identifying the need for prophylaxis and avoiding extreme outcomes
Speaker: Peter Kouides, MD (he/him/his) – Mary M. Gooley Hemophilia Center
09:02 – 09:15 CEST

Discussion
09:15 – 10:00 CEST

PART 2: Tools to identify bleeding disorders in WGBD
Chair: Roshni Kulkarni, MD – Michigan State University Centers for Bleeding and Clotting Disorders
09:17 – 09:32 CEST

BAT: Utilization by healthcare professionals
Speaker: Robert F. Sidonio, MD, MSc. (he/him/his) – Aflac Cancer and Blood Disorders
09:32 – 09:47 CEST

The role of effective communication between healthcare professionals
Speaker: Pam Wilton, RN, CRE (she/her/hers) – Canadian Hemophilia Society
09:47 – 10:00 CEST

Discussion
10:00 – 10:20 CEST

Break
10:20 – 11:05 CEST

PART 3: Lack of evidence and bridging the gap
Chair: Tahira Zafar, MBBS, DCP, FRCPath – Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN
10:22 – 10:37 CEST

Importance of collecting data for WGBD and strategies to overcome the evidence gap
Speaker: Tahira Zafar, MBBS, DCP, FRCPath – Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN
10:37 – 10:52 CEST

Lack of inclusion of women in clinical trials and strategies to foster inclusion
Speaker: Roshni Kulkarni, MD – Michigan State University Centers for Bleeding and Clotting Disorders
10:52 – 11:05 CEST

Discussion
11:05 – 12:05 CEST

PART 4: Ask the experts
Moderator: Lauren Phillips (she/her/hers) – Haemophilia New Zealand
11:07 – 12:05 CEST

Panel discussion
Panelist: Nicola Curry, MD – Oxford Haemophilia & Thrombosis Centre
Panelist: Anne-Louise Cruickshank, Diploma (she/her/hers) – Uct/sahf
Panelist: Elizabete Pumpure, MD MBA – Riga East Clinical University Hospital
12:05 – 13:00 CEST

Lunch
13:00 – 14:30 CEST

PART 5: Clinical cases
Chair: Robert F. Sidonio, MD, MSc. (he/him/his) – Aflac Cancer and Blood Disorders
13:02 – 13:12 CEST

Case example and strategy
Speaker: Elizabete Pumpure, MD MBA – Riga East Clinical University Hospital
13:12 – 13:17 CEST

Present case #1: Italy
Speaker: Maria Elisa Mancuso, MD, PhD – IRCCS Humanitas Research Hospital
13:17 – 13:22 CEST

Present case #2: Thailand
Speaker: Ampaiwan Chuansumrit, MD (she/her/hers) – Department of Pediatrics, Ramathibodi Hospital
13:22 – 13:27 CEST

Present case #3: India
Speaker: Nita Radhakrishnan, MD Pediatrics, Fellowship In Pediatric Hematology Oncology (she/her/hers) – Post Graduate Institute of Child Health
13:27 – 13:32 CEST

Present case #4: Venezuela
Speaker: Apsara Boadas, Postgraduate Degree in Haematology (she/her/hers) – Banco Municipal de Sangre DC/National Hemophilia Center of Venezuela
13:32 – 14:30 CEST

Breakout groups discussion
14:30 – 14:45 CEST

Closing and Recap
Speaker: Roshni Kulkarni, MD – Michigan State University Centers for Bleeding and Clotting Disorders