Track: PWBD
Tatiana Bathfield
Secretary
Haemophilia Association of Mauritius, Mauritius
Karola Diosi (she/her/hers)
Volunteer
EHC Women and Bleeding Disorders Committee
Budapest, Hungary
Gabrielle Flores (she/her/hers)
Patient
National Bleeding Disorders Foundation
St. Louis, United States
Nic Hawkes (she/her/hers)
Patient with a bleeding disorder
Rare and BDUC working group
The Haemophilia Society, United Kingdom
Maja Johanne Søndergaard Knudsen, MD
Member
The Danish Haemophilia Society, ERIN committee, Denmark
This session aims to bring attention to rare bleeding disorders (RBDs) by providing a platform for patients to share their experiences. Topics include the importance of inclusivity within the bleeding disorders community, and the impact of broadening our focus beyond hemophilia. Additionally, patients will share their personal stories highlighting their experiences with a RBD, covering aspects such as access to treatment and care, quality of life, and more.
Speaker: Tatiana Bathfield – Haemophilia Association of Mauritius
Speaker: Gabrielle Flores (she/her/hers) – National Bleeding Disorders Foundation
Speaker: Karola Diosi (she/her/hers) – EHC Women and Bleeding Disorders Committee
Speaker: Maja Johanne Søndergaard Knudsen, MD – The Danish Haemophilia Society, ERIN committee
Speaker: Nic J. Hawkes (she/her/hers) – The Haemophilia Society