Track: WFH
Donna Coffin, MSc
Director, Research & Education
World Federation of Hemophilia
Montreal, Canada
Emna Gouider, MD
Hematologist
Aziza Othmana Hospital
Tunis, Tunisia
Alfonso Iorio, MD, PhD, FRCP(C) (he/him/his)
Professor, Department of Health Research Methods, Evidence, and Impact (HEI)
McMaster University
Hamilton, Canada
Ampaiwan Chuansumrit, MD (she/her/hers)
Professor of Pediatrics
Department of Pediatrics, Ramathibodi Hospital
Bangkok, Thailand
Alfonso Iorio, MD, PhD, FRCP(C) (he/him/his)
Professor, Department of Health Research Methods, Evidence, and Impact (HEI)
McMaster University
Hamilton, Canada
Joseph John Manthanathu, MD, MD, MBA (he/him/his)
Professor and Head
Department of Clinical Haematology
Christian Medical College
Ludhiana, India
Brian O'Mahony, FACSLM
CEO
Irish Haemophilia Society
Dublin, Ireland
David Page
Consultant, Safety and Supply of Coagulation Products
Canadian Hemophilia Society
Saint-Michel-de-Bellechasse, Canada
Mark Skinner, JD (he/him/his)
President and CEO
Institute for Policy Advancement Ltd
Washington, United States
Ellia Tootonchian, MPH
Data & Research Manager
World Federation of Hemophilia
Montreal, Canada
Toong Youttananukorn, PhD
Data Quality Manager
World Federation of Hemophilia
Montreal, Canada
Long-term surveillance and collection of data on bleeding disorders provide valuable insight into global disparities in treatment and care. The demographic and clinical data collected are powerful tools for developing data-driven patient care strategies and educational initiatives. Through collaboration with colleagues and researchers within the bleeding disorders community, the WFH will host a workshop aimed at highlighting the significance of these tools, showcasing the impact of data on advocacy and research, as well as the importance of building national registries.
Chair: Donna Coffin, MSc – World Federation of Hemophilia
Speaker: Ellia Tootonchian, MPH – World Federation of Hemophilia
Speaker: Toong Youttananukorn, PhD – World Federation of Hemophilia
Speaker: Mark W. Skinner, JD (he/him/his) – Institute for Policy Advancement Ltd
Chair: Emna Gouider, MD – Aziza Othmana Hospital
Speaker: David Page – Canadian Hemophilia Society
Speaker: Ampaiwan Chuansumrit, MD (she/her/hers) – Department of Pediatrics, Ramathibodi Hospital
Chair: Alfonso Iorio, MD, PhD, FRCP(C) (he/him/his) – McMaster University
Speaker: Joseph John Manthanathu, MD, MD, MBA (he/him/his) – Christian Medical College
Speaker: Alfonso Iorio, MD, PhD, FRCP(C) (he/him/his) – McMaster University
Speaker: Brian O'Mahony, FACSLM – Irish Haemophilia Society