Track: PWBD
Margareth C. Ozelo, MD, PhD (she/her/hers)
Professor
Hemocentro UNICAMP, University of Campinas
Campinas, Brazil
Mahmoud Abu-Riash, Mr.
Senior Clinical Specialist
King Faisal Specialist Hospital and Research Centre
Riyadh, Saudi Arabia
Daan Breederveld, MD (he/him/his)
Registered Occupational Physician
Independent medical advisor
Broek in Waterland, Netherlands
Víctor Jiménez-Yuste, PhD, MD (he/him/his)
Head of Hematology Department
La Paz University Hospital
Madrid, Spain
Luke Pembroke (he/him/his)
Assistant Ecologist
Arbtech
Tunbridge Wells, United Kingdom
Ekawat Suwantaroj, Mr (he/him/his)
Vice President of the Thai Hemophilia Patient Club
Thai Hemophilia Patient Club
Bangkok, Thailand
Cathy Tiggs, MSSA LISW (she/her/hers)
Social Worker
UH Cleveland Medical Center
Cleveland Heights, United States
The session explores gene therapy (GT) for hemophilia, covering medical advancements, social work assessments, nursing support, and patient perspectives. Learn about the differences in treatment experiences between hemophilia A and B and the outcomes observed in clinical trials. Understand the role of social workers in evaluating patient readiness and supporting psychosocial needs. Discover how nurses educate and assist patients throughout the gene therapy process. Hear firsthand from patients about their experiences, challenges, and successes with gene therapy. By integrating diverse viewpoints, the session fosters a deeper understanding of GT's complexities and implications for patients and caregivers alike.
Chair: Margareth C. Ozelo, MD, PhD (she/her/hers) – Hemocentro UNICAMP, University of Campinas
Speaker: Víctor Jiménez-Yuste, PhD, MD (he/him/his) – La Paz University Hospital
Speaker: Cathy M. Tiggs, MSSA LISW (she/her/hers) – UH Cleveland Medical Center
Speaker: Mahmoud Abu-Riash, Mr. – King Faisal Specialist Hospital and Research Centre
Speaker: Daan Breederveld, MD (he/him/his) – Independent medical advisor
Speaker: Luke Pembroke (he/him/his) – Arbtech
Speaker: Ekawat Suwantaroj, Mr (he/him/his) – Thai Hemophilia Patient Club