Track: PWBD
Soledad Rivero Haedo (she/her/hers)
Secretary of the Board of Directors
Fundación de la Hemofilia de Argentina
Capital Federal, Argentina
Marlene Beijlevelt
Nurse Practitioner
Amsterdam Univertisy Medical Centre
Amsterdam, Netherlands
Silvina Graña, Clinical Psychologist (she/her/hers)
Psychologist
Fundación de la Hemofilia de la Argentina
Buenos Aires, Argentina
Tatjana Markovic, volunteer (she/her/hers)
Board member/vice president
Serbian Hemophilia Society
Nis, Serbia
Join us for an informative session on parenting a child with a bleeding disorder, where we'll explore the unique challenges and responsibilities involved. Learn how to navigate the medical, psychosocial, and practical aspects while seeking support from healthcare professionals and the bleeding disorder community. Discover effective ways to communicate with your child and others about the condition, adapting to their age and understanding. Gain valuable knowledge on venous access skills crucial for managing bleeding disorders requiring frequent treatments, ensuring proper techniques tailored to the child's age and developmental stage. Don't miss this opportunity to gain valuable insights and find solutions to common questions.
Chair: Soledad Rivero Haedo (she/her/hers) – Fundación de la Hemofilia de Argentina
Speaker: Tatjana Markovic, volunteer (she/her/hers) – Serbian Hemophilia Society
Speaker: Silvina Graña, Clinical Psychologist (she/her/hers) – Fundación de la Hemofilia de la Argentina
Speaker: Marlene Beijlevelt – Amsterdam Univertisy Medical Centre