Volunteer AHU / USA and Canada referent in COA
Hemophilia Association of Uruguay / Coalition of Americas
Montevideo, Uruguay
Amanda is Severe Hemophilia A symptomatic-carrier and the mother of two little boys (one with hemophilia). She has been working as a volunteer in Uruguay's NMO since 2018. She had been recipient of a Susan Skinner fund Schoolarship in 2017-18. She has been working really hard on his country's lobbying strategy with the Uruguayan team seeking to change the conditions of people with hemophilia in a country with many opportunities but great delays in terms of care and treatment.