Research Fellow
Brighton and Sussex Medical School
Brighton, United Kingdom
Dr Richard Gorman lives with severe Haemophilia A and is an active advocate within the rare disease community where his work has focussed on expanding the opportunities for patient voices to shape healthcare.
Additionally, Richard is a research fellow at Brighton and Sussex Medical School in the UK, interested in the social and ethical implications of different healthcare practices. Richard is trained as a social scientist and his research takes an interdisciplinary approach and uses qualitative social science research to understand situated practices of health, care, and medicine. He focusses on placing lived experiences at the centre of conceptually and theoretically robust scholarship to explore how different knowledges interact to enable possibilities for quality care.
Working alongside other people living with haemophilia, Richard has developed a strand of research that explores how patient education, patient engagement, and patient involvement are conceptualised within haemophilia research and healthcare. This work has made recommendations relating to better incorporating patient voices into shared decision making practices, understanding the complexities involved in informed consent, and ensuring lived experience perspectives shape future therapeutic landscapes.