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Program is subject to change
Space limited - first-come, first-served
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Medical
PWBD
WFH
WGBD
Psychosocial
Nurses
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Sun, Apr 21
Mon, Apr 22
Tue, Apr 23
Wed, Apr 24
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Wednesday, April 24, 2024
09:00 - 10:00
CEST
WE-FP-07 - Free paper session: Von Willebrand disease
Chair:
Nathan Connell, MD,MPH (he/him/his)
– Brigham And Women's Hospital - Harvard Medical School
Medical
09:00 - 10:00
CEST
WE-FP-07 - Free paper session: Von Willebrand disease
Location: N106
Chair:
Nathan Connell, MD,MPH (he/him/his)
– Brigham And Women's Hospital - Harvard Medical School
Medical
09:00 - 10:00
CEST
WE-DEN-03 - Dental Education for PwH and their care givers
Chair:
Branislav Bajkin, PhD
– University of Novi Sad, Faculty of Medicine
Dental
09:00 - 10:00
CEST
WE-DEN-03 - Dental Education for PwH and their care givers
Location: N117-N118
Chair:
Branislav Bajkin, PhD
– University of Novi Sad, Faculty of Medicine
Dental
09:00 - 10:00
CEST
WE-MED-12 - How much prophylaxis is enough?
Co-Chair:
Emna Gouider, MD
– Aziza Othmana Hospital
Medical
09:00 - 10:00
CEST
WE-MED-12 - How much prophylaxis is enough?
Location: N103-N104
Co-Chair:
Emna Gouider, MD
– Aziza Othmana Hospital
Medical
09:00 - 10:00
CEST
WE-MSK-05 - Sports-related joint injuries for PWBD: Prevention, rehabilitation, and return to play
Co-Chair:
Sebastien Lobet, PhD (he/him/his)
– Cliniques universitaires Saint-Luc
Co-Chair:
Haroon Adam Mann, MBBS MD FRCS(Tr&Ortho) (he/him/his)
– UCL Medical School
MSK
09:00 - 10:00
CEST
WE-MSK-05 - Sports-related joint injuries for PWBD: Prevention, rehabilitation, and return to play
Location: N105
Co-Chair:
Sebastien Lobet, PhD (he/him/his)
– Cliniques universitaires Saint-Luc
Co-Chair:
Haroon Adam Mann, MBBS MD FRCS(Tr&Ortho) (he/him/his)
– UCL Medical School
MSK
09:00 - 10:00
CEST
WE-WFH-03 - Advancing standards of care globally
Chair:
Glenn Pierce, MD, PhD
– World Federation of Hemophilia
WFH
09:00 - 10:00
CEST
WE-WFH-03 - Advancing standards of care globally
Location: N107-N108
Chair:
Glenn Pierce, MD, PhD
– World Federation of Hemophilia
WFH
09:00 - 10:00
CEST
WE-PWBD-10 - How do you measure bleeding today? Factor Levels vs. Phenotype
Chair:
Dawn Rotellini (she/her/hers)
– National Bleeding Disorders Foundation
PWBD
09:00 - 10:00
CEST
WE-PWBD-10 - How do you measure bleeding today? Factor Levels vs. Phenotype
Location: N101-N102
Chair:
Dawn Rotellini (she/her/hers)
– National Bleeding Disorders Foundation
PWBD
10:15 - 10:45
CEST
WE-PL-MED - PLENARY: Hemophilia in the era of novel therapies: Where do inhibitors feature in the new landscape?
Chair:
Christoph Königs
– University Hospital Frankfurt, Department of Paediatrics
Medical
10:15 - 10:45
CEST
WE-PL-MED - PLENARY: Hemophilia in the era of novel therapies: Where do inhibitors feature in the new landscape?
Location: N103-N104
Chair:
Christoph Königs
– University Hospital Frankfurt, Department of Paediatrics
Medical
10:15 - 10:45
CEST
WE-PWBD-PL - PLENARY: Do PWBD treat as recommended? Why or why not?
Chair:
Carlos Safadi Márquez
– Fundación de la Hemofilia (Argentina)
Speaker:
Miguel A. Escobar, MD
– University of Texas
Speaker:
Juan Andrés Pereira de Souza, MA (he/him/his)
– Asociación De Hemofilia Del Uruguay
PWBD
10:15 - 10:45
CEST
WE-PWBD-PL - PLENARY: Do PWBD treat as recommended? Why or why not?
Location: N101-N102
Chair:
Carlos Safadi Márquez
– Fundación de la Hemofilia (Argentina)
Speaker:
Miguel A. Escobar, MD
– University of Texas
Speaker:
Juan Andrés Pereira de Souza, MA (he/him/his)
– Asociación De Hemofilia Del Uruguay
PWBD
10:45 - 11:30
CEST
COFFEE BREAK/MODERATED POSTER SESSIONS
10:45 - 11:30
CEST
COFFEE BREAK/MODERATED POSTER SESSIONS
Location: Exhibit Hall (Hall 9)
11:30 - 12:30
CEST
WE-LAB-03 - Factor VIII activity assays used for the diagnosis and classification of haemophilia A
Co-Chair:
Liliana C. Rossetti, PhD (she/her/hers)
– Instituto de Medicina Experimental (IMEX) - CONICET- Academia Nacional de Medicina (ANM)
Co-Chair:
Tulasi Geevar, MBBS, MD (she/her/hers)
– Christian Medical College
Laboratory Sciences
11:30 - 12:30
CEST
WE-LAB-03 - Factor VIII activity assays used for the diagnosis and classification of haemophilia A
Location: N105
Co-Chair:
Liliana C. Rossetti, PhD (she/her/hers)
– Instituto de Medicina Experimental (IMEX) - CONICET- Academia Nacional de Medicina (ANM)
Co-Chair:
Tulasi Geevar, MBBS, MD (she/her/hers)
– Christian Medical College
Laboratory Sciences
11:30 - 12:30
CEST
WE-MED-13 - Diagnosis and treatment of von Willebrand Disease in 2024 and beyond
Co-Chair:
Michelle Lavin, MB BCh BAO, PhD, FRCPath (she/her/hers)
– National Coagulation Centre, St. James's Hospital
Co-Chair:
Robert F. Sidonio, MD, MSc. (he/him/his)
– Aflac Cancer and Blood Disorders
Medical
11:30 - 12:30
CEST
WE-MED-13 - Diagnosis and treatment of von Willebrand Disease in 2024 and beyond
Location: N103-N104
Co-Chair:
Michelle Lavin, MB BCh BAO, PhD, FRCPath (she/her/hers)
– National Coagulation Centre, St. James's Hospital
Co-Chair:
Robert F. Sidonio, MD, MSc. (he/him/his)
– Aflac Cancer and Blood Disorders
Medical
11:30 - 12:30
CEST
WE-MSK-06 - Musculoskeletal care for women with hemophilia and other bleeding disorders
Co-Chair:
Megan Kennedy, BSc, PhD
– Trinity College Dublin
Co-Chair:
Adolfo Llinas, MD (he/him/his)
– Fundacion Santa Fe de Bogota
MSK
11:30 - 12:30
CEST
WE-MSK-06 - Musculoskeletal care for women with hemophilia and other bleeding disorders
Location: N106
Co-Chair:
Megan Kennedy, BSc, PhD
– Trinity College Dublin
Co-Chair:
Adolfo Llinas, MD (he/him/his)
– Fundacion Santa Fe de Bogota
MSK
11:30 - 12:30
CEST
WE-PSYCH-03 - Strengthening coping skills
Chair:
Richa Mohan, MA M.MPhil (Psychology) (she/her/hers)
– Empowering Minds Society for Research and Development
Psychosocial
11:30 - 12:30
CEST
WE-PSYCH-03 - Strengthening coping skills
Location: N107-N108
Chair:
Richa Mohan, MA M.MPhil (Psychology) (she/her/hers)
– Empowering Minds Society for Research and Development
Psychosocial
11:30 - 12:30
CEST
WE-PWBD-11 - Evolving healthcare: A medical lens on novel treatment strategies
Chair:
Brian O'Mahony, FACSLM
– Irish Haemophilia Society
PWBD
11:30 - 12:30
CEST
WE-PWBD-11 - Evolving healthcare: A medical lens on novel treatment strategies
Location: N101-N102
Chair:
Brian O'Mahony, FACSLM
– Irish Haemophilia Society
PWBD
12:30 - 13:30
CEST
LUNCH BREAK
12:30 - 13:30
CEST
LUNCH BREAK
12:30 - 13:30
CEST
World Hemophilia Day Celebration
12:30 - 13:30
CEST
World Hemophilia Day Celebration
Location: Exhibit Hall (Hall 9)
13:30 - 14:45
CEST
WE-FP-08 - Free paper session: Musculoskeletal health
Co-Chair:
Rohini Akash Dange, MPT
– Sahyadri Speciality Hospital, Heamophilia Society of Maharashtra, Pune chapter
Co-Chair:
Luigi Solimeno, MD
– IRCCS Ospedale Policlinico di Milano
MSK
13:30 - 14:45
CEST
WE-FP-08 - Free paper session: Musculoskeletal health
Location: N105
Co-Chair:
Rohini Akash Dange, MPT
– Sahyadri Speciality Hospital, Heamophilia Society of Maharashtra, Pune chapter
Co-Chair:
Luigi Solimeno, MD
– IRCCS Ospedale Policlinico di Milano
MSK
13:30 - 14:45
CEST
WE-MED-14 - Outcomes & outcome measures
Co-Chair:
Santiago Bonanad, MD (he/him/his)
– Hospital Universitari i Politècnic La Fe
Co-Chair:
Alok Srivastava, MD, FRACP, FRCPA, FRCP
– Christian Medical College
Medical
13:30 - 14:45
CEST
WE-MED-14 - Outcomes & outcome measures
Location: N103-N104
Co-Chair:
Santiago Bonanad, MD (he/him/his)
– Hospital Universitari i Politècnic La Fe
Co-Chair:
Alok Srivastava, MD, FRACP, FRCPA, FRCP
– Christian Medical College
Medical
13:30 - 14:45
CEST
WE-NUR-03 - The challenges of longevity
Chair:
BJ Ramsay, BSc Nursing (he/him/his)
– Wellington Regional Haemophilia Centre, Wellington Hospital
Nurses
13:30 - 14:45
CEST
WE-NUR-03 - The challenges of longevity
Location: N117-N118
Chair:
BJ Ramsay, BSc Nursing (he/him/his)
– Wellington Regional Haemophilia Centre, Wellington Hospital
Nurses
13:30 - 14:45
CEST
WE-PWBD-12 - Empowering patients & providers: Shared decision-making in practice
Chair:
Johnny Mahlangu, MBBCh, MMed
– University of the Witwatersrand and NHLS
PWBD
13:30 - 14:45
CEST
WE-PWBD-12 - Empowering patients & providers: Shared decision-making in practice
Location: N101-N102
Chair:
Johnny Mahlangu, MBBCh, MMed
– University of the Witwatersrand and NHLS
PWBD
13:30 - 14:45
CEST
WE-PWBD-13 - Pain and PWBD in the new era: Understanding pain beyond joint damage
Chair:
Kate Khair, PhD
– Haemnet
PWBD
13:30 - 14:45
CEST
WE-PWBD-13 - Pain and PWBD in the new era: Understanding pain beyond joint damage
Location: N106
Chair:
Kate Khair, PhD
– Haemnet
PWBD
15:15 - 16:15
CEST
WE-FP-09 - Free paper session: Gene Therapy
Chair:
David Lillicrap, MD
– Queen's University
Medical
15:15 - 16:15
CEST
WE-FP-09 - Free paper session: Gene Therapy
Location: N106
Chair:
David Lillicrap, MD
– Queen's University
Medical
15:15 - 16:15
CEST
WE-FP-10 - Free paper session: Psychosocial and nurse care delivery and management
Chair:
Kate Khair, PhD
– Haemnet
Psychosocial
15:15 - 16:15
CEST
WE-FP-10 - Free paper session: Psychosocial and nurse care delivery and management
Location: N117-N118
Chair:
Kate Khair, PhD
– Haemnet
Psychosocial
15:15 - 16:15
CEST
WE-LBA-02 - Late breaking session: Clinical trials and novel therapies
Chair:
Margareth C. Ozelo, MD, PhD (she/her/hers)
– Hemocentro UNICAMP, University of Campinas
Medical
15:15 - 16:15
CEST
WE-LBA-02 - Late breaking session: Clinical trials and novel therapies
Location: N101-N102
Chair:
Margareth C. Ozelo, MD, PhD (she/her/hers)
– Hemocentro UNICAMP, University of Campinas
Medical
15:15 - 16:15
CEST
WE-PWBD-14 - Game-changing health: Bridging new treatment, sports, and everyday living
Chair:
Cindy Bailey, DPT OCS SCS ATC
– Los Angeles Orthopaedic Hemophilia Treatment Center
PWBD
15:15 - 16:15
CEST
WE-PWBD-14 - Game-changing health: Bridging new treatment, sports, and everyday living
Location: N105
Chair:
Cindy Bailey, DPT OCS SCS ATC
– Los Angeles Orthopaedic Hemophilia Treatment Center
PWBD
15:15 - 16:15
CEST
WE-WGBD-03 - Intimacy for women with bleeding disorders
Chair:
Dawn Rotellini (she/her/hers)
– National Bleeding Disorders Foundation
WGBD
15:15 - 16:15
CEST
WE-WGBD-03 - Intimacy for women with bleeding disorders
Location: N107-N108
Chair:
Dawn Rotellini (she/her/hers)
– National Bleeding Disorders Foundation
WGBD
16:30 - 17:00
CEST
WE-PL-G - Closing Plenary
Speaker:
Alain Baumann, MBA (he/him/his)
– World Federation of Hemophilia
Speaker:
Cedric Hermans, MD, PhD (he/him/his)
– Cliniques Universitaires Saint-Luc
Speaker:
Glenn Pierce, MD, PhD
– World Federation of Hemophilia
Speaker:
Daniel-Aníbal García Diego (he/him/his)
– Fedhemo - Federación Española de Hemofilia
Speaker:
Edwin Goh
– Hemophilia Society of Malaysia
Speaker:
Cesar Garrido
– World Federation of Hemophilia
WFH
16:30 - 17:00
CEST
WE-PL-G - Closing Plenary
Location: N101-N102
Speaker:
Alain Baumann, MBA (he/him/his)
– World Federation of Hemophilia
Speaker:
Cedric Hermans, MD, PhD (he/him/his)
– Cliniques Universitaires Saint-Luc
Speaker:
Glenn Pierce, MD, PhD
– World Federation of Hemophilia
Speaker:
Daniel-Aníbal García Diego (he/him/his)
– Fedhemo - Federación Española de Hemofilia
Speaker:
Edwin Goh
– Hemophilia Society of Malaysia
Speaker:
Cesar Garrido
– World Federation of Hemophilia
WFH
